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Challenges faced by parents of children with autism spectrum disorder in Malaysia

Chu, Shin Ying and Mohd. Normal, Siti Nor Syamim Aqila and McConnell, Grace E. and Tan, Joo Siang and Dhillon Joginder Singh, Susheel Kaur (2020) Challenges faced by parents of children with autism spectrum disorder in Malaysia. Speech, Language and Hearing, 23 (4). pp. 221-231. ISSN 2050-571X

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Official URL: http://dx.doi.org/10.1080/2050571X.2018.1548678

Abstract

Purpose: A limited number of studies have explored the challenges and issues faced by parents with children of autism spectrum disorder (ASD) who are receiving speech-language services in Malaysia. This study aimed to explore the perceptions, challenges, and experiences of parents whose children with ASD are receiving speech-language therapy services. Methods: Three individual interview sessions were conducted with eight parents of children with ASD. Interviews were transcribed and evaluated using thematic analysis. Results: Four major themes were discovered from the interviews with the parents of children with ASD. These included: (1) a lack of knowledge about ASD, (2) insights into the impacts of ASD on the parents’ lives, (3) their perceived challenges at the time they were seeking speech intervention, and (4) their views about the positive aspects of their children receiving speech therapy. Conclusions: Parents viewed their children’s speech therapy as positive and helpful, but they also perceived barriers and challenges when accessing this therapy. An increase in public awareness about ASD and establishing structured ASD support group could provide helpful resources for parents and may assist them in overcoming these challenges. Future studies should determine coping strategies and solutions for these challenges to provide better support for families of children with ASD.

Item Type:Article
Uncontrolled Keywords:interview, parents, speech therapy
Subjects:H Social Sciences > H Social Sciences (General)
L Education > L Education (General)
Divisions:Education
ID Code:89711
Deposited By: Yanti Mohd Shah
Deposited On:22 Feb 2021 14:10
Last Modified:22 Feb 2021 14:10

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