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Psychological approach in managing muscular dystrophy patients in Malaysia

Che Ismail, Elna Herawati and Othman, Nooraini (2015) Psychological approach in managing muscular dystrophy patients in Malaysia. Iranian Journal of Public Health, 44 (3). pp. 418-419. ISSN 0304-4556

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Official URL: http://ijph.tums.ac.ir/index.php/ijph/article/view...

Abstract

Muscular dystrophy is a hereditary and progressive degenerative disorder affecting skeletal muscles, and often-other organ systems. The real bur-den of muscular dystrophy in Malaysia is difficult to estimate, since the epidemiological data for each of muscular dystrophies and even for muscu-lar dystrophies in collective are not available. There are not many researches focusing on mus-cular dystrophy in Malaysia. The few available re-searches related to muscular dystrophy in Malaysia are mostly revolving around the medical and ge-netic science aspects of it, not in the psychology and social sides of the disease. There is no official definition for rare diseases in Malaysia. Nonethe-less, the unofficial working definition for rare dis-eases in Malaysia is that the rare diseases are dis-eases, which affect less than one in 4000 people in the population. About 3% of babies will have some serious birth defect worldwide while in Ma-laysia, there are around 600,000 births every year and therefore, there would be about 18,000 babies will be born with birth defects every year.

Item Type:Article
Uncontrolled Keywords:dystrophy, patients
Subjects:T Technology > T Technology (General)
Divisions:Perdana School of Science, Technology and Innovation Policy
ID Code:55115
Deposited By: Muhamad Idham Sulong
Deposited On:29 Aug 2016 02:40
Last Modified:29 Aug 2016 02:40

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